HEALTH PROMOTING PRACTICES FOR INDIVIDUALS WITH SICKLE CELL DISEASE: DEVELOPMENT OF A TECHNICAL EDUCATIONAL PRODUCT

Authors

  • Lilian Anabel Becerra de Oliveira Centro Universitário Adventista do Nordeste (UNIAENE)
  • Juliane Nascimento de Sousa Centro Universitário Adventista do Nordeste (UNIAENE)
  • Anselmo Cordeiro de Souza Faculdade Adventista da Bahia https://orcid.org/0000-0002-0156-716X
  • Sânzia Bezerra Ribeiro Centro Universitário Adventista do Nordeste (UNIAENE)
  • Tiago Silva Lopes Universidade Federal do ABC
  • Abrahão Fontes Baptista Universidade Federal do ABC
  • Katia Nunes Sá Escola Bahiana de Medicina e Saúde Pública (EBMSP)

DOI:

https://doi.org/10.19141/2237-3756.lifestyle.v11.n00.pe1599

Keywords:

Sickle cell disease, Health education, Comic

Abstract

This study aimed to build and obtain validation evidence of an educational booklet for people with sickle cell disease, containing eight practices aimed at promoting health aiming for a better quality of life. A booklet was developed in the format of a comic book with playful characteristics that proposes health-promoting practices: healthy eating, hydration, exposure to “sunlight” and “fresh air”, practice of physical activities, balance, rest and spirituality. This is a methodological study carried out based on the construction of the educational material, with subsequent validation by 24 experts in the field. Content validation was established considering a Content Validity Index (CVI) greater than 80%. All expert judges agreed that the booklet addresses habits that can be beneficial to individuals with sickle cell disease. The suggestions sent were accepted, such as simplifying the vocabulary, changing the type of font, increasing the art of red blood cells and others. All items were assessed as relevant, and the CVI reached an average of 0.96. After the adjustments suggested by the judges, the material was presented to ten adults with sickle cell disease who approved it. The booklet was considered valid due to its reliability recognized by professionals specialized in sickle cell disease and quality of life in terms of content, including language adopted, topics covered and illustrations. It is suggested to use the comic book on social media and in print for distribution to health professionals and community agents

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Author Biography

Anselmo Cordeiro de Souza, Faculdade Adventista da Bahia

Pesquisador do Grupo de Estudo e Pesquisa em Promoção da Saúde e Estilo de Vida (ProSEV). Mestre em Promoção da Saúde pelo Centro Univeritario Adventista de São Paulo (UNASP).

References

ABDALA, G. A. et al. Validação do Questionário Oito Remédios Naturais – Q8RN – versão adulto. Life Style, v. 5, n. 2, p. 109-134, 2018. https://doi.org/10.19141/2237-3756.LIFESTYLE.V5.N2.P109-134 DOI: https://doi.org/10.19141/2237-3756.lifestyle.v5.n2.p109-134

ADEGBOLA, M. Spirituality, Self-Efficacy, and Quality of Life among Adults with Sickle Cell Disease. Southern Online Journal of Nursing Research, v. 11, n. 1, 2011. Disponível em: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc3137798/. Acesso em: 7 maio 2023. DOI: https://doi.org/10.5402/2011/672579

BAHIA (Estado); UNIVERSIDADE FEDERAL DO RECÔNCAVO DA BAHIA. Doença falciforme: o papel da escola. Salvador: Secretaria da Educação; Cruz das Almas: UFRB, 2017. E-book. Disponível em: https://www.ufrb.edu.br/portal/images/documentos/2018/cartilha_doenca_falciforme.pdf. Acesso em: 16 maio 2023.

BANDEIRA, F. et al. Vitamin D deficiency: a global perspective. Arquivos Brasileiros de Endocrinologia e Metabologia, v. 50, n. 4, p. 640-646, 2006. https://doi.org/10.1590/S0004-27302006000400009 DOI: https://doi.org/10.1590/S0004-27302006000400009

BORISOVSKAYA, A.; CHMELIK, E.; KARNIK, A. Exercise and Chronic Pain. Advances in Experimental Medicine and Biology, n. 1228, p. 233-253, 2020. https://doi.org/10.1007/978-981-15-1792-1_16 DOI: https://doi.org/10.1007/978-981-15-1792-1_16

BRASIL. Ministério da Saúde. Manual de educação em saúde. Volume 1: Autocuidado na doença falciforme. Brasília, DF: Ministério da Saúde, 2008. E-book. Disponível em: https://bvsms.saude.gov.br/bvs/publicacoes/manual_educacao_saude_volume1.pdf. Acesso em: 14 maio 2023.

CANÇADO, R. D.; JESUS, J. A. A doença falciforme no Brasil. Revista Brasileira de Hematologia e Hemoterapia, v. 29, n. 3, p. 203-206, 2007. https://doi.org/10.1590/S1516-84842007000300002 DOI: https://doi.org/10.1590/S1516-84842007000300002

CICERO, C. E. et al. Comic book-based educational program on epilepsy for high-school students: Results from a pilot study in the Gran Chaco region, Bolivia. Epilepsy & Behavior, n. 107, e107076, 2020. https://doi.org/10.1016/j.yebeh.2020.107076 DOI: https://doi.org/10.1016/j.yebeh.2020.107076

CONNES, P. et al. Exercise limitation, exercise testing and exercise recommendations in sickle cell anemia. Clinical Hemorheology and Microcirculation, v. 49, n. 1-4, p. 151-163, 2011. https://doi.org/10.3233/ch-2011-1465 DOI: https://doi.org/10.3233/CH-2011-1465

DAMPIER, C. et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. American Journal of Hematology, v. 86, n. 2, p. 203-205, 2011. https://doi.org/10.1002/ajh.21905 DOI: https://doi.org/10.1002/ajh.21905

FREITAS, R. P. M. et al. Educação em saúde com gestantes e mães sobre noções de cuidado com o neonato. Revista Brasileira Multidisciplinar, v. 21, n. 3, p. 120-134, 2018. https://doi.org/10.25061/2527-2675/ReBraM/2018.v21i3.554 DOI: https://doi.org/10.25061/2527-2675/ReBraM/2018.v21i3.554

GALINDO NETO, N. M. et al. Primeiros socorros na escola: construção e validação de cartilha educativa para professores. Acta Paulista de Enfermagem, v. 30, n. 1, p. 87-93, 2017. https://doi.org/10.1590/1982-0194201700013 DOI: https://doi.org/10.1590/1982-0194201700013

GILES-CORTI, B. et al. City planning and population health: a global challenge. Lancet, v. 388, n. 10062, p. 2912-2924, 2016. https://doi.org/10.1016/s0140-6736(16)30066-6 DOI: https://doi.org/10.1016/S0140-6736(16)30066-6

GUNES, S. et al. Parent-reported sleep problems in children and adolescents with sickle cell disease: relationship to health-related quality of life. Archives of Medical Science, v. 18, n. 3, p. 659-665, 2022. https://doi.org/10.5114%2Faoms%2F124154

KATO, G. J. et al. Sickle cell disease. Nature Reviews. Disease Primers, n. 4, e18010, 2018. https://doi.org/10.1038/nrdp.2018.10 DOI: https://doi.org/10.1038/nrdp.2018.10

KEENAN, M. E. et al. Empirically Derived Profiles of Health-Related Quality of Life in Youth and Young Adults with Sickle Cell Disease. Journal of Pediatric Psychology, v. 46, n. 3, p. 293-303, 2021. https://doi.org/10.1093/jpepsy/jsaa104 DOI: https://doi.org/10.1093/jpepsy/jsaa104

MÄLSTAM, E. et al. “Weaving lifestyle habits”: Complex pathways to health for persons at risk for stroke. Scandinavian Journal of Occupational Therapy, v. 29, n. 2, p. 152-164, 2022. https://doi.org/10.1080/11038128.2021.1903991 DOI: https://doi.org/10.1080/11038128.2021.1903991

MAYBERRY, J. F. The design and application of effective written instructional material: a review of published work. Postgraduate Medical Journal, v. 83, n. 983, p. 596-598, 2007. https://doi.org/10.1136%2Fpgmj.2006.053538 DOI: https://doi.org/10.1136/pgmj.2006.053538

MCDERMOTT, J. E.; PARTRIDGE, M.; BROMBERG, Y. Ten simple rules for drawing scientific comics. PLoS Computational Biology, v. 14, n. 1, e1005845, 2018. https://doi.org/10.1371/journal.pcbi.1005845 DOI: https://doi.org/10.1371/journal.pcbi.1005845

MOREIRA, M. F.; NÓBREGA, M. M. L.; SILVA, M. I. T. Written communication: contribution to the development of educational material in health. Revista Brasileira de Enfermagem, v. 56, n. 2, p. 184-188, 2003. https://doi.org/10.1590/S0034-71672003000200015 DOI: https://doi.org/10.1590/S0034-71672003000200015

OGUNSILE, F. J. et al. Metabolic syndrome among adults living with sickle cell disease. Blood Cells, Molecules & Diseases, n. 74, p. 25-29, 2019. https://doi.org/10.1016/j.bcmd.2018.10.005 DOI: https://doi.org/10.1016/j.bcmd.2018.10.005

PANEPINTO J. A.; BONNER M. Health-related quality of life in sickle cell disease: past, present, and future. Pediatric Blood & Cancer, v. 59, n. 2, p. 377-385, 2012. https://doi.org/10.1002/pbc.24176 DOI: https://doi.org/10.1002/pbc.24176

PECKER, L. H.; DARBARI, D. S. Psychosocial and affective comorbidities in sickle cell disease. Neuroscience Letters, n. 705, p. 1-6, 2019. https://doi.org/10.1016/j.neulet.2019.04.011 DOI: https://doi.org/10.1016/j.neulet.2019.04.011

PRADO, C. C.; SOUSA JUNIOR, C. E.; PIRES, M. L. Histórias em quadrinhos: uma ferramenta para a educação e promoção da saúde. RECIIS, v. 11, n. 2, 2017. https://doi.org/10.29397/reciis.v11i2.1238 DOI: https://doi.org/10.29397/reciis.v11i2.1238

REID, M. Nutrition and sickle cell disease. Comptes Rendus Biologies, v. 336, n. 3, p. 159-163, 2013. https://doi.org/10.1016/j.crvi.2012.09.007 DOI: https://doi.org/10.1016/j.crvi.2012.09.007

RODRIGUES, C. F. A. et al. Prejudice impairing quality of life in sickle cell disease patients in a developing country: faces of suffering. Hematology, Transfusion and Cell Therapy, v. 45, supl. 2, p. S3-S10, 2021. https://doi.org/10.1016/j.htct.2021.06.002 DOI: https://doi.org/10.1016/j.htct.2021.06.002

SHI, J.; MO, X.; SUN, Z. Content validity index in scale development. Zhong Nan Da Xue Xue Bao Yi Xue Ban, v. 37, n. 2, p. 152-155, 2012. https://doi.org/10.3969/j.issn.1672-7347.2012.02.007

SILVA, L. S. et al. Construção de produto educativo “Coisas de mulher” Promoção da saúde da mulher climatérica. In: CONGRESSO INTERNACIONAL DAS LICENCIATURAS – COINTER PVDL 2020, 7., 2-5 dez. 2020. Anais [...]. Recife: Instituto Internacional Despertando Vocações, 2020. Disponível em: https://cointer.institutoidv.org/smart/2020/pdvl/uploads/1752.pdf. Acesso em: 7 maio 2023.

SOUZA, A. C. et al. Sickle cell disease and health promotion at school: knowledge and assis-tance of teachers in a public institution. South American Journal of Basic Education, Tech-nical and Technological, v. 9, n. 1, p. 12-26, 2022. Disponível em: https://periodicos.ufac.br/index.php/SAJEBTT/article/view/4504 Acesso em: 7 maio 2023.

SOUZA, A. C.; SILVA, W. S.; OLIVEIRA, E. F.; MARTINS, L. T. Spiritualities, religions and theologies: possibilities in health promotion?. Práxis Teológica, v. 17, n. 1, p. e1572, 2021. https://doi.org/10.25194/2317-0573.2021v17n1.e1572 DOI: https://doi.org/10.25194/2317-0573.2021v17n1.e1572

ZUKOWSKY-TAVARES, C. et al. Experiência de educação em saúde sobre sexualidade com adolescentes institucionalizados. Revista Brasileira em Promoção da Saúde, v. 30, n. 1, p. 135-140, 2017. https://doi.org/10.5020/18061230.2017.p135 DOI: https://doi.org/10.5020/18061230.2017.p135

Published

2024-10-12

How to Cite

Becerra de Oliveira , L. A., Nascimento de Sousa, J., Cordeiro de Souza, A., Bezerra Ribeiro , S., Silva Lopes, T., Fontes Baptista, A., & Nunes Sá, K. (2024). HEALTH PROMOTING PRACTICES FOR INDIVIDUALS WITH SICKLE CELL DISEASE: DEVELOPMENT OF A TECHNICAL EDUCATIONAL PRODUCT. Journal of Interdisciplinary Lifestyle Studies, 11(00), e1599. https://doi.org/10.19141/2237-3756.lifestyle.v11.n00.pe1599
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